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The University of Arizona College of Medicine Department of Bioethics and Medical Humanism in partnership with the Center for Humane Diagnosis presents “Framing a Prenatal Down Syndrome Diagnosis: Insight From Real Patient Experiences.”
A 2008 poll of American College of Obstetricians and Gynecologist fellows and junior fellows found that only 36 percent felt “well-qualified” in counseling an expectant mother whose prenatal screen suggests a high chance for Down Syndrome. While care for patients with genetic differences has made enormous strides in recent years, poor prenatal diagnosis delivery continues to fracture the relationship between healthcare professionals and many in the disability community.
Patient panelists from the Center for Humane Diagnosis will shed light on their diagnosis experiences, everyday life with their children and best practices for presenting a prenatal disability diagnosis.